Wednesday 20 February 2008

Introductions

well here i am, i never thought i world start one of these, but on my journey, i have found only small snippets of other people going through the rollercaoster of ttc, when one partner (or both) have CF.

some background history:

My name is Alison, i am married to Adam. We got together in April 2004, Engaged 2005, married in May 2007.
I am 24 and Suffer with Cystic fibrosis and cf related diabetes. I take (when good) creon 25000, DNase, Ventolin inhalers and nebs, seretide 250 inhaler, vitamins, colomycin, novorapid insulin and various other things inbetween.
I have a port a cath in situ, which is my 6th port going and i am hoping this one stays as there are running out of veins!!! i go to hotel Glenfield in leicester for my treatment and go every 4 weeks for a flush and go 'in' every 3 months or so for IV treatment, which is usually colomycin and meropenim. i am allergic to many other antibiotics and the most recent was tazocin which i had an anaphalytic reaction to which was very very scary. i generally keep well, my weight is stable (i am a chubby cfer!) and my lung function, when well is about 75%, when i am unwell it can go down to 55% .

we decieded to try for a baby after many talks about how it would affect us, would I be able to cope with being pregnant, with a baby, with a toddler ? would i fit in my treatments, what would we do when i was in hospital? in the end we decieded that we would go for it as we have a great family and social network to support us and i didnt want to wait till i was older as my health would not have been in peak condition. This was in January 2005. After trying for a year we thought that we would continue another year and see where it got us, i remember thinking, ' i want it so much it will happen naturally' and after the next year, Jan 2007 we decieded to get married in the may and we said we would go to the doctors if it hadnt happened. i honestly thought we wouldnt need to go, i was convinced it would happen by the wedding and that would be that.
When it didnt and at the end of may i finally plucked up the courage and went to see the gp and my cf consultant, firstly adam had to have blood taken for a genetics test to see if he was a cf carrier, the results came back within 10 days to show he wasnt a carrier for the most common genes which takes our chances of having a cf baby down to 1 in 665 or there abouts. this was low enough risk for me.
When i spoke to my GP she referred us to a fertility clinic at northampton and by november we had a letter asking to book an appointment. great things were finally starting to move on wards although it was a strange time as it was like admitting defeat and that we couldnt do most thing others can do sometimes by 'accident'!! january loomed and it signalled the 3 years we had been trying to conceive (TTC) our first appointment with the fertility clinic was on the 11th january....

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